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Update on Mum

Biopsy positive for cancer, no surprise, no type yet as that will take a few days and really, after the brain tumor I’m not necessarily expecting a type to be found. the spot for biopsy was mid-back as that vertebra was quite dark on the MRI. The biopsy increased the pain a great deal and today Mum was on a morphine pump so less pain, more loopey, but loopey is okay and the pain lessens though being so drives her nuts. I keep telling her since she knows how loopy she sounds that is proof she’s not yet lost her mind. Radiation therapy starts Friday. that is expected to eradicate all the cancer in her spine. What residual pain is left based on the deterioration of the affected vertebrae is yet to be known. she cannot be discharged until the pain is low enough to be handled with oral pain killers that would make her a lump in a chair.

We are just taking it one step at a time. My mum will indicate when enough is enough, but for now she wants the treatment. When the cancer pops up again she may well make a different choice. It is her choice to make, but that whole does sadden me a great deal. It makes you feel like a little kid again, where the thought of being around without your mum is just too terrible to contemplate.

Thank you {{{{{{{{{{everyone}}}}}}}}}}} for your thoughts, energy, prayers, and candles. they mean a great deal to me. Sorry I have responded individually. I’ve made these two posts on LJ, one comment, and 2 posts in a forum in the past few weeks and that has been a stretch. FIREFLY – thank you for your advice, no VNA in PA, but we do have home health agencies here, mum does have a wee bit of long term care insurance. I will need to speak to the social services department of the hospital and maybe the Area Agency on Aging if I don’t like the answers from social services.

15 Comments

Update on Mum, not reading most of lj and barely email – apologies

The cancer is back with my mum, in her spine per the MRI. Oncologist says very treatable and radiation will get rid of the pain (which is pretty horrendous from the expressions in my mum’s face), but since it cropped up once it will crop up again. He said she’ll still be here for the holidays, but not ten years from now. That’s a helluva spread, but I’m this much closer to this side of ten years and I’m guessing so is she.

Biopsy of the vertebrae on Tuesday with answers to what type of cancer in a few days after that. Asked for better pain management for her and so she has morphine. The confusion cleared up when her sodium went back up near normal. The pain made it hard to think, too, as does the morphine, but better from good drugs than bad pain.

Won’t be online much as you can imagine. I’ll try to check email daily, but between my mum and working more hours I’m a bit strapped. Plus figuring out after care when right now she cannot only walk a few steps and then only with full body support … fucked up all the way around. Her mind is clear enough to know exactly what is going on, too lucid for a nursing home which would kill her faster than the cancer so hopefully after radiation we can get her home care exactly how much she’ll need I have *no clue* or how expensive it is. LOOKS AT FIREFLY FOR HELP! But I told her we’d find a way for her to be at home if that is what she wants. She may be thinking she wants to be there so she can die there, but I haven’t the balls yet to ask that outright (still growing them I guess).

Found this out on Friday. Figured I should update my disappearance from the net. For all of those on my flist who may be suffering right now, too (didn’t read, so don’t know) I send you {{{{{{{{{{{hugs}}}}}}}}} for clarity, peace, and comfort.

8 Comments

No push-ups today, Mum back in hospital

Sodium very low, vicodin screwing with her brain, too, right hip so bad couldn’t get out of bed. Were at ER 1 week ago for said hip, only prescribed Vicodin, lots of incomplete and missed messages between her doc and her – more vicodin – bad combo. Ambulance took her after freind and neighbor checked on her when my daughter could not get ahold of her. Worked 10-9, then to hospital, now home. Actually it is 12:20, but backdated the entry for push-ups. Will make them up, but not today.

Need to fix her hip and find a way to control sodium loss. Fuck. Just fuck. May be sciatica with the hip, but who knows. Sounded slightly better with saline IV-ing into her. Really upped the stress level. Fuck.

2 Comments

Random bits, religious work

Nice big “duh” moment for me today. After posting a little while back about energy flow and it not going through/out my head I continued to puzzle on it, but decided just “eh, go with what works for now.”

So this morning my routine (it is now a routine, yes) a chanting meditation, ground, center, pulling energy up circling it at my center, sending it through my arms to my hands and “played” with it for awhile. Then, just for difference I released it into the tabletop fountain on my altar. The part of the fountain that the water flows up through and out the top is shaped, in an abstract way, like a woman’s body. Suddenly – bam! – lightbulb. Change the flow of energy I pull up into the same frequency (?), consistency (?), whatever you call it, as water, and channel it like the fountain, up to the head, out the crown, gently skimming as it flows down, out, and away. Aaahhh …. so easy now.

Let’s see. Yemaya. Fountain, Seashells, West (my favorite quarter). Ocean, my favorite spot to be. Healing, the direction most of my herb and oil work takes. Hhhhhmmmmmmm …. who would have *thunk* to use water as the conduit for my blocked energy flow??  Hi, l’il clue by four, pleased to meet ya!

Ha! It is good to be humbled. It keeps me from getting all full of myself. 🙂

And now – off to work.

10 Comments

The neck, the back – jimminy crickets I’m too young for this!

Sitting on the floor, for hours, is stupid when you have arthritis. Here’s the problem, you take your meds (we’re up to 800mg twice a day) and you feel GREAT! So you sit on the wood floor, cross-legged and everything. You’re so intent on printing your product labels accurately and prettily that yor mind pretty much completely disconnects from your body. You finish. You get up. Ha! Wrong wrong wrong, joke is on YOU! You attempt to get up. Sadly, you fail. GGgrrrrr. Stupid body.

1 Comment

The emo song

I’m guessing most on my flist have already heard this, but LOL. Coutesy of the 15 y/o son.

http://emosong.ytmnd.com/

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The icon is the 15 y/o when he was young and innocent .

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Mum update – Free for 3 months! Woot!!!!!!

The lung, abdomen, and pelvis CTs were clear any nodules! YAY!!!!!!!!!!!!! We’re still waiting for the estrogen receptor stain, results later today or Monday. But YAY!!!!!!!!!!!!!! The longer it takes to show the less aggressive it is, so YAY!!!!!!!!!!!!!

CTs repeated in 3 months and every 3 months for at least one year if they remain clear. The oncologist expects something to show up eventually, but for now YAY!!!!!!!!!!!!

No more doctors until August as long as the estrogen receptor test is negative.

BTW, did I say YAY!!!!!!!!!!!!!!!!

3 Comments

Short update

Mum had her “where’s the cancer now?” CT’s (results Friday), PC follow-up, took her grocery shopping, got her handicap paper notarized and sent. Tired …zzz….. It has been a long few months. She won’t be allowed to drive for months to come and I think I need to lean on the kids to do some of the driving.

Oldest child turned 24 yesterday, youngest turned 15 today. Celebration for both is this Sunday. Need to clean. Tired …. zzz ……

Grandson here tomorrow, my Thursday duty – heh – good thing he is such a sweetie.

Random other stuff, but just a bit too tired to put it together in a post. Bath and sleep will be good tonight.

4 Comments

You wanna know WHY people in the U.S buy meds from other countries? One more reason:

US Drug Pacts Keep Some Generics off Market: FTC

By Peter Kaplan

WASHINGTON (Reuters) Apr 25 – Brand-name drug makers are striking more deals with generic rivals to restrict the introduction of cheaper generic drugs, U.S. antitrust authorities said on Monday.

Emboldened by recent victories in court, pharmaceutical companies are using controversial settlements that entail payments to generic rivals which promise to restrict selling competing generic drugs, a Federal Trade Commission official said in a speech on Monday.

“We are seeing far more settlements today that potentially raise competition concerns,” FTC Commissioner Jon Leibowitz said in prepared remarks for a Philadelphia business group.

Leibowitz’s comments came on the same day the FTC released a report on patent settlements among drug companies.

The FTC has filed lawsuits in recent years challenging patent settlement agreements between major drugmakers and their generic rivals. In some cases, the FTC contends the settlements stifle competition because drugmakers are paying generics to stay out of the market.

Generic drugs are typically cheaper for consumers to buy than brand-name drugs.

http://www.medscape.com/viewarticle/530747?src=mp

Must register to read.

Shouldn’t our health insurance companies be fighting this? Generics cost them less, too. What a freaking racket all the damn around. ~grumble spit~